How Do You Know Which CHD Organizations to Trust?

On January 2, 2012 · Leave a Comment · In CHD Organizations

Chances are if you or someone you know is affected by a CHD at some point you’re going to want to donate time, money or goods to an organization helping with some angle of congenital heart disease. I read a lot of updates accusing this organization or that organization of not helping.

I’m not [...]

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CHD Resources

On December 31, 2011 · Leave a Comment · In Resources

Rather you’re searching for a congenital heart disease support group or links to organizations funding CHD research, this is the section for you. A comprehensive overview of links to CHD sites, including both reputable medical resources and blogs of people affected by CHD.

The CHD Blog Directory

Support and Parent or Patient-led  Awareness Groups [...]

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CHD Blog Directory

On December 31, 2011 · 1 Comment · In Blog Directory, Resources

I think we all have much to learn from each other, rather your child was just diagnosed or you’ve been living with CHD for years.

Anyone that has a CHD affiliation is welcome to be added to the directory. I’m categorizing them as I think would be helpful and am open to suggestions. When [...]

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Antidepressants, Congenital Heart Defects and Law Firm Hype

On January 2, 2011 · Leave a Comment · In Prevention

Ever since I first started reading about congenital heart defects, an article would pop up about a link between antidepressants and CHD every few days. The articles seem to largely be stirred up by law firms looking for clients, parents of children with birth defects that took antidepressants during pregnancy in particular. Obviously the law [...]

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Christopher’s Story: Barth Syndrome Awareness

On January 2, 2011 · Leave a Comment · In CHD Stories

Congenital heart defects are different from many other illnesses. There aren’t just four or five varieties. There are at least 30. Too often with many of these defects, other underlying conditions are also present. For instance, about half of patients with down syndrome also have a heart defect.

Just a few months after I first [...]

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Corbin’s Story: William’s Syndrome and CHD, Detected After Birth

On January 2, 2011 · Leave a Comment · In CHD Stories, Pulse Ox

Hardly a day goes by that I don’t read of another sweet baby lost to congenital heart defects. On most days, I read about a baby detected too late, or one that pulse ox might have helped. Corbin is one of those babies, and he’s so much more. His mother is an incredible advocate, and [...]

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Harlow’s Story

On January 1, 2011 · Leave a Comment · In CHD Stories, Pulse Ox

Sadly, as a heart mom active in the congenital heart defect community, hearing about another baby lost to this horrific condition is a several times a day occurrence. Every death touches me. No matter what I’m doing I always stop to learn more about the baby.

 

When I get emails about babies that were undetected [...]

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Do Heartburn Medications Cause CHD?

On January 1, 2011 · Leave a Comment · In Prevention

Only a few months ago, I wrote about the hype surrounding congenital heart defects and the mother’s use of anti-depressants in pregnancy.

 

A few days after I wrote the post, I woke up to a note from my husband about a late night television commercial he saw making the link. He hadn’t read my post, [...]

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