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"CHD Stories"
Congenital heart defects are different from many other illnesses. There aren’t just four or five varieties. There are at least 30. Too often with many of these defects, other underlying conditions are also present. For instance, about half of patients with down syndrome also have a heart defect.
Just a few months after I first [...]
Hardly a day goes by that I don’t read of another sweet baby lost to congenital heart defects. On most days, I read about a baby detected too late, or one that pulse ox might have helped. Corbin is one of those babies, and he’s so much more. His mother is an incredible advocate, and [...]
Sadly, as a heart mom active in the congenital heart defect community, hearing about another baby lost to this horrific condition is a several times a day occurrence. Every death touches me. No matter what I’m doing I always stop to learn more about the baby.
When I get emails about babies that were undetected [...]
- Spreading Congenital Heart Disease research, resources, and information in memory of Cora.
