If you live in New Jersey and have a baby, her heart will be checked because of one little girl born with a broken heart. Talia’s family, including mom Rachel Goldberg successfully advocated for the screening.
Talia was sent home with a critical congenital heart defect. I’ll let her mom share her story, but because [...]
These days, hardly a day goes by without a news story on screening newborns for heart defects. It’s a “hot topic.” Screening for heart defects is moving congenital heart disease into becoming a household phrase–one that all parents are at least aware of. That’s a good thing.
As pulse oximetry screening becomes more popular [...]
Hardly a day goes by that I don’t read of another sweet baby lost to congenital heart defects. On most days, I read about a baby detected too late, or one that pulse ox might have helped. Corbin is one of those babies, and he’s so much more. His mother is an incredible advocate, and [...]
Sadly, as a heart mom active in the congenital heart defect community, hearing about another baby lost to this horrific condition is a several times a day occurrence. Every death touches me. No matter what I’m doing I always stop to learn more about the baby.
When I get emails about babies that were undetected [...]

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- Talia’s Story: The Family Behind the New Jersey Heart Screening Bill
- “Heart Warriors” Book Review and Giveaway: The Must Read for Any CHD Family
- CHD Awareness Hits the White House: The Lihn Family Tell Their Story
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