Before Cora was born, I focused a lot on keeping her safe during pregnancy. I got so caught up in the tests and screenings during pregnancy, I gave newborn screening little thought. I knew that a heel stick would be done and a bit of her blood taken, but thought it only [...]
Rather you’re searching for a congenital heart disease support group or links to organizations funding CHD research, this is the section for you. A comprehensive overview of links to CHD sites, including both reputable medical resources and blogs of people affected by CHD.
Support and Parent or Patient-led Awareness Groups [...]
I think we all have much to learn from each other, rather your child was just diagnosed or you’ve been living with CHD for years.
Anyone that has a CHD affiliation is welcome to be added to the directory. I’m categorizing them as I think would be helpful and am open to suggestions. When [...]

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