Rather you’re searching for a congenital heart disease support group or links to organizations funding CHD research, this is the section for you. A comprehensive overview of links to CHD sites, including both reputable medical resources and blogs of people affected by CHD.
Support and Parent or Patient-led Awareness Groups
The Congenital Heart Information Network
Adult Congenital Heart Association
James’s Project (Patient safety, with strong CHD ties)
The Congenital Heart Defect Quilt Awareness Project
Children’s Cardiology Foundation
Ellianna Grace Foundation (Fetal Cardiac Intervention)
Area-Specific Groups
Helping Hands/Healing Hearts (Rhode Island and Southern Mass.)
Children’s Heart Foundation Nevada
Condition Specific Organisations
Children’s Cardiomyopathy Foundation
Sisters By Heart (HLHS support)
Parent Heart Watch (Sudden Cardiac Arrest)
Financial Help for Families
Congenital Heart Information Network: Spencer’s Fund
Patient/Parent Groups Raising Funds for Research and Research Organizations
Hospitals and Clinicans
Congenital Heart Surgery Center
Boston Children’s Hospital Heart Center
Texas Children’s Hospital Heart Center
The Children’s Hospital of Philadelphia: Cardiac Center
Cove Point Foundation Heart Information (From John Hopkin’s)
Mayo Clinic: Congenital Heart Disease
Other CHD Links
American Heart Assocation: CHD Information
March of Dimes: CHD Information
Children’s National Hospital: CHD Screening Program
MedLine Plus: Congenital Heart Disease
Non-US Based Organizations
International Children’s Heart Foundation
Non-Disease Specific Helpful Organizations
Mason’s Cause- financial help after babyloss
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